The Past, Present and Future of Cerebral Palsy Registers in Ireland
A stakeholder event to learn from national and international experiences
Monday 2nd December 2024, 9.00am to 4.00pm
Venue: Albert Lecture Theatre, RCSI, 123 St Stephen’s Green
We hope you will join us to mark the launch of an exciting new 5-year project to establish a national register for cerebral palsy in Ireland. As we embark on this project, this event will share learnings from national and international approaches to the surveillance of cerebral palsy.
Programme
| Time | Title | Speaker |
| 9.00 | Registration | |
| 9.30 | Welcome | Jennifer Ryan |
| 9.45 | Surveillance of Cerebral Palsy in Europe – benefits of a register network | Kate Himmelman |
| 10.15 | The History of Cerebral Palsy Registers in Ireland | Owen Hensey |
| 10.30 | An overview of the Northern Ireland Cerebral Palsy Register (NICPR) | Claire Kerr and Alix Crawford |
| 11.00 | Q&A | |
| 11.15 | Break | |
| 11.45 | The Impact of a Combined Medical Quality Registry and Surveillance Program for Cerebral Palsy: Insights and Experiences | Sandra Julsen Hollung |
| 12.30 | Netherlands CP register: An innovative follow-up and treatment register for children and adolescents with cerebral palsy | Aukje Andringa |
| 1.15 | Q&A | |
| 1.30 | Lunch | |
| 2.30 | Hip surveillance in the Republic of Ireland (CPIP) | Amanda O’Sullivan and Elaine McConkey |
| 2.50 | Achieving excellent healthcare for Ireland, shaped by reliable data: the role of the National Office of Clinical Audit (NOCA) | Marina Cronin |
| 3.10 | Development of a Cerebral Palsy Register in Ireland | Jennifer Ryan |
| 3.30 | Q&A | |
| 3.50 | Close | |
Logos of sponsors of the CP-Life Register event
This project, to establish a cerebral palsy register in Ireland, is part of the ELEVATE Programme of research, which is funded under the Science Foundation Ireland Strategic Partnership Programme with co-funding from the Cerebral Palsy Foundation. The ELEVATE Programme is led by UCC’s INFANT Research Centre with partners RCSI and Trinity College Dublin.
This event is supported by funding from the Health Research Board’s Conference and Events Sponsorship Scheme, awarded to the CP-Life Research Centre at RCSI.
Travelling to the Event
Public Transport
Due to its city centre location, RCSI is easily accessible by public transport and is served by many Dublin Bus routes.
RCSI is conveniently located on the Luas Green Line. The St Stephen’s Green Luas stop is approximately 2 – 3 minutes, walking, from RCSI York Street entrance.
By Car: The St Stephen’s Green Q-carpark is the closest carpark to RCSI and is located just a short walk from the building. You can find more information about the carpark here